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Welcome to the Turner Syndrome Society Website PDF Print E-mail

The members of our society have offered a wealth of support for over 20 years. We understand that every person’s needs are unique as Turner Syndrome affects each girl and woman in a different way.

Education is our foremost goal whether you are a member of our society or a guest, you can access the latest Turner Syndrome Clinical Guidelines, attend our National Conference, get support from parents and adult women that “have been where you are”, and access local chapter and support group information, plus many other resources.

Membership to our society allows us to continue to offer valuable services to all those touched by TS and also gives individuals, families, and professionals the opportunity to access more resources. Click here to join. Read more about the benefits of membership here.

Popular Links
The 2009 TSSUS Conference
Plan on meeting us in beautiful Portland, Oregon in July of 2009.  Dates will be determined soon and the theme will be announced early so that everyone can anticipate another great experience.  The 22nd Annual Conference (2009) will add an optional tour for a Thursday outing.  We'll also give much info. in the next TSS Connect.
  
About Our New Website
Please be patient as we are in the final stages of updating and transitioning our new site for a more user friendly format.  The design element will take place last and it will surely be a sight we'll all be proud of.   You may experience problems with logins, donations, and membership. Please contact the national office at 800-365-9944 for assistance. Thank you for your support and patience.
 
The 2008-2009 TSSUS Educational and Awareness Programs

Chapters

  • Leader Packages (business cards, new materials)
  • Leadership Workshop
  • Administrative Support
  • Program Guidance
Conferences (Annual and Regional)  
  • Educational Sessions
  • Forums
  • Social Events
Media Communications
  •  Free educational materials mailed to anyone upon request (within the US)
  • Brochures (Eng/Spanish)
  • Publications (Family Guide, Coley’s Story)
  • Copies of Medical Guidelines and Recommendations
  • Newsletter (TSS Connect)
  • New Member Packets (resources)
Medical Advisory Board
  • Research Opportunity Resources and Outreach
  • Resource Directory
  • Support Groups
    • Administrative Support
Volunteer Outreach
  •   “expert” peer and professional volunteers
  • Phone, email, pen/pal, e-pal

Website

  • Ask the Experts (members only)
  • Message Boards (registered members only)
  • Educational Publications- free
  • Resources
Fundraising
  • Annual Campaign
  • Company Matching Gift Program
  • Good Search
  • United Way

Scholarships

  • Camps
  •  Conferences
  •  Memberships


 

 
 

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