Turner Syndrome Society

 
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The members of our society have offered a wealth of support for over 20 years. We understand that every person’s needs are unique as Turner syndrome affects each girl and woman in a different way.

Education is our foremost goal whether you are a member of our society or a guest you can access, for free, all educational and medical information. Our most popular items are the Turner Syndrome Clinical Guidelines, National Conference, Volunteer Support (parents and adult women that “have been where you are”), and Local Chapter and Support Group information.

Membership to our society allows us to continue to offer valuable services to all those touched by TS and also gives individuals, families, and professionals the opportunity to access more resources. Click here to join. Read more about the benefits of membership here.

Popular Links
The 22nd Annual TSSUS Conference for 2009
Plan on meeting us in beautiful Portland, Oregon. July 17-19, 2009 are the confirmed dates for the annual conference. The theme will be "Fun in the Sun" and we'll be incorporating an organized optional tour for a half-day Thursday outing. Keep visiting the website for details and look for information in the TSS Connect as well.

About Our New Website
Please be patient as we are in the final stages of updating and transitioning our new site for a more user friendly format. The design element will take place last and it will surely be a website we'll all be proud of. If you experience problems with logins, donations, or membership areas please contact the national office at 800-365-9944 so that we may report errors to our webmasters and/or assist you personally. Thank you for your support and patience.


The 2008-2009 TSSUS Educational and Awareness Programs

Chapters

  • Leader Packages (business cards, new materials)
  • Leadership Workshop
  • Administrative Support
  • Program Guidance
Conferences (Annual and Regional)
  • Educational Sessions
  • Forums
  • Social Events
Media Communications
  • Free educational materials mailed to anyone upon request (within the US)
  • Brochures (Eng/Spanish)
  • Publications (Family Guide, Coley’s Story)
  • Copies of Medical Guidelines and Recommendations
  • Newsletter (TSS Connect)
  • New Member Packets (resources)
Medical Advisory Board
  • Research Opportunity Resources and Outreach
  • Resource Directory
  • Support Groups
    • Administrative Support
Volunteer Outreach
  • “expert” peer and professional volunteers
  • Phone, email, pen/pal, e-pal

Website

  • Ask the Experts (members only)
  • Message Boards (registered members only)
  • Educational Publications- free
  • Resources
Fundraising
  • Annual Campaign
  • Company Matching Gift Program
  • Good Search
  • United Way

Scholarships

  • Camps
  • Conferences
  • Memberships


 
 

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Turner Syndrome Society